UDW caregivers started 2016 off with a bang. In fact, we made history.

Overtime pay

On February 1^st, for the first time ever, eligible IHSS providers began receiving pay for the hours of overtime we work – a right we fought hard to secure throughout 2015.

Throughout the year, we worked with the state to make sure overtime was a benefit for all providers. With our help, the state developed exemptions to the tough new IHSS overtime and workweek rules that helped prevent unfair disruptions in our clients’ care.

Social Security and unemployment benefits for ALL caregivers

In 2016, we also began our work to win unemployment, Social Security, and Medicare benefits for IHSS providers who care for their spouse or child – an issue that has affected many of us personally, including former IHSS provider Cathyleen Williams from Barstow.

“I was Caleb’s mother, but I was also his home care provider,” wrote Cathyleen in an op-ed in the San Diego Union-Tribune. “Caleb passed away and my job as his home care provider ended, I applied for — and was denied — unemployment.”

With Cathyleen’s and so many other stories to push us, we fought hard to get our sponsored bill, AB 1930, passed through both the Senate and the Assembly. The bill would have convened a committee to look into the financial impact exclusion from basic benefits like unemployment pay has on parent and spouse providers. Although AB 1930 was passed unanimously by the legislature, Governor Brown vetoed it in late September.

“I don’t think I will ever be able to truly put into words the pain of losing a child,” continued Cathyleen. “But I know I want to help lessen this pain for other parent and spouse home care providers who have to navigate the world without their loved one and no social safety net.”

Instead of looking at the veto of AB 1930 as a defeat, UDW caregivers can take solace in the fact that our elected leaders and the public heard us, as we can continue our work to win these benefits in 2017.

$15, paid sick days, and more

In April, we helped win one of the toughest battles facing working people today – the Fight for $15. Because of rallies, marches, lobby visits at the Capitol, demonstrations and more work alongside other low wage workers, our elected leaders agreed to a plan that will raise California’s minimum wage to $15 by 2022 and give IHSS providers paid sick days.

“This a huge victory for all working Californians, but especially IHSS providers,” said UDW President and our fellow home care worker Editha Adams. “We’ve been denied paid sick leave and a livable wage for far too long.”

We celebrated this amazing achievement, but we also used it as a stepping stone. We know the work of IHSS providers is worth far more than minimum wage, which is why UDW caregivers went All In for Care. At the state level in Orange, Riverside, and San Diego counties, and at the county level in other UDW counties, we will continue to demand respect, dignity, as well as fair pay and benefits for our work at the bargaining table.

Cuts to the IHSS program have a direct impact our caregivers and our clients. The 7% cut to our clients’ hours of care was restored for one year in 2015. In 2016, we also lobbied and successfully urged our elected leaders to restore our clients’ hours for another three years.

Your IHSS paycheck

As we all know, the current IHSS payroll system is far from reliable. Early this year, UDW caregivers decided that enough was enough. We’re tired of waiting for late paychecks and timesheets, and we’re tired of not knowing if and when we’ll be able to pay our bills.

In May, we testified at a joint Legislative Audit Committee hearing at the Capitol to ask the legislature to approve an audit of the IHSS payroll system. Claire Kaufman, an IHSS provider for her daughter Katie in El Dorado County, was one of the providers who told her story. “Last November, I submitted my IHSS timesheet for the first 15 days of the month and waited for my paycheck,” said Claire. “I waited days and then weeks, unable to get an answer about the delay.” Claire was finally paid just before Christmas in 2015, but her family had to sacrifice their holidays so that she could catch up on their bills.

The committee approved the audit, and we expect to receive the findings in early 2017. UDW will then use them to create legislation that will address and fix the problems with the payroll system.

We didn’t stop at the audit, though, and throughout the year we continued to urge the state to make improvements. Finally, in October, after a lot of pressure from UDW, the state announced it would offer an electronic timesheet option in 2017.

Election Day 2016

In addition to our UDW fights and victories, we elected a new president in 2016, and despite our feelings – good or bad – about the outcome, President-elect Trump will take office in January. The incoming president, his administration, and the Republican led Congress have all expressed opposition to programs on which IHSS providers, recipients, and working families rely.

The election sets the stage for some major fights in 2017:

House Speaker Paul Ryan has long threatened to cut Medicaid, which provides 55% of the funding for IHSS.

Senate Majority Leader Mitch McConnell said repealing the ACA, which has made an estimated 75,000 UDW caregivers eligible for free or low-cost health coverage, would be “the first item up in the new year.”

The Freedom Foundation

And an anti-home care organization known as the Freedom Foundation has begun targeting UDW caregivers – making themselves a major threat in 2017. The Freedom Foundation tells IHSS providers to quit their union in order to save money. Unfortunately, they don’t tell the full story. As a union, we’ve fought and won big victories, not only this year (see a list of our many victories together here). No one provider could do alone what we do together. The Freedom Foundation wants to weaken strong unions like ours, in order to further their corporate billionaire-backed agenda.

Preparing for 2017

In 2017 we will continue to urge the state to fix the IHSS payroll system once and for all, and we will keep pushing for Social Security, Medicare, and unemployment pay for spouse and parent providers.

It will also be our time to prove that when UDW home care workers stand together, we can fight back against attempts to take our healthcare, weaken IHSS, or weaken us as a union by taking our voice and power. The stakes have never been higher, but we have protected home care and our clients time and time again – if we stand together, next year will be no different.

We look forward to fighting for home care with you in 2017. Happy New Year!

Which lawmakers stood up for seniors, people with disabilities, working families, and California’s in-home caregivers?

Every year, UDW scores the California legislature and the governor on their support of policies that impact homecare recipients and care providers. This year, we’ve added the overall career scores of our elected leaders to acknowledge those who have consistently supported providers and our IHSS clients. Find out how the governor and your lawmakers scored by clicking on the booklet below.

“It makes you feel like a second-class citizen,” said Claire Kaufman, an IHSS provider for her daughter, Katie, who lives with autism in El Dorado County.

Claire was reacting to Governor Brown’s decision today to veto Assembly Bill 1930. Like nearly 86,000 other parent and spouse providers, Claire was hoping the governor would do the right thing and put providers on a path to securing Social Security, Medicare, and unemployment pay—basic safety net benefits that IHSS providers who care for their child or spouse are currently excluded from.

This year our union UDW sponsored AB 1930, and caregivers shared our stories with legislators at the Capitol, signed petitions, and called our elected leaders, urging them to stand with us on this vital issue. Our hard work paid off: the bill received unprecedented bipartisan support and was passed unanimously by both the State Assembly and the Senate. Once it got to the governor’s desk, we made one last push to get it passed when we delivered petitions signed by thousands of Californians urging the governor to sign the bill.

But today Governor Brown vetoed AB 1930 in spite of our efforts, leaving tens of thousands of spouse and parent caregivers worrying about whether we will ever be able to retire without the supplemental benefit of Social Security. And without unemployment pay, many of us will continue to wonder what would happen to our families if our client passes away.

These problems may sound far off or abstract to some, including the governor, but to home care providers, they are very real.

“Like many home care recipients, a lot of our family members are medically fragile,” said Claire. “I have a six-year-old daughter at home as well. If something happened to Katie, my youngest daughter and I would have to rely on public assistance because I don’t qualify for unemployment.”

Cathyleen Williams from San Bernardino County knows that nightmare firsthand. Her son Caleb passed away this year. When he passed, she not only lost her most precious loved one, but her entire income as well. Cathyleen applied for unemployment benefits because she’d worked as her son’s IHSS provider for nine years. She was shocked when she was denied, all because her IHSS client was her son.

Cathyleen shared her story when she joined UDW caregivers at the Capitol in Sacramento to deliver our petitions urging the governor to sign AB 1930. “No one should have to endure the death of their young child,” she said. “But to grieve while also scrambling to make sure your bills are paid and you don’t end up homeless? I wouldn’t wish this nightmare on my greatest enemy.”

And it is a nightmare. It’s also a source of frustration and confusion for home care providers who know our work is worthy of the same respect and benefits as all other work.

“I’m a single mom who works as a full-time caregiver,” said Jesse Torres from San Diego County. “I take my job seriously. I’ve completed trainings and received certifications to make sure I provide my daughter the best care she can get.”

Jesse’s 12-year-old daughter Cessia lives with Rett syndrome, which causes physical and mental disabilities. To manage Cessia’s condition, Jesse has worked as her full-time IHSS provider for 10 years. “Why am I not eligible for the same benefits as any other mother who goes to her job every day?” Jesse asked. “I could put my daughter in a medical facility or a nursing home that would cost the state more money, and the caregivers there would do the same work but they would get these benefits.”

Despite the governor’s decision today, UDW will continue to make winning Social Security, Medicare, and unemployment pay for spouse and parent providers a top priority. “All home care providers are workers who deserve dignity and respect,” said UDW Executive Director Doug Moore. “Spouse and parent home care providers have worked long enough without access to these basic benefits.”

UDW will keep you updated on our continued work to win Social Security, Medicare, and unemployment benefits for spouse and parent caregivers via our website – www.udwa.org – and our Facebook page – www.facebook.com/UDW.

For Immediate Release

September 30, 2016

Contact: Margitte Kristjansson, 619-548-4304

The governor’s veto of Assembly Bill 1930 leaves thousands of caregivers without vital safety benefits.

Sacramento – Today Governor Brown vetoed UDW sponsored Assembly Bill 1930 despite widespread public support and unanimous passage by both the Assembly and the Senate.

AB 1930 was the first step for In-Home Supportive Services (IHSS) providers who care for their spouse or children to secure Social Security, Medicare, and unemployment benefits. If passed, it would have established the IHSS Family Caregiver Benefits Advisory Committee to study the financial impact exclusion from these benefits has had on the estimated 86,000 home care workers who currently go without.

“It is unfair that as home care providers we commit to caring for children and adults with disabilities as well as seniors, but we’re left out of the safety net benefits all workers need,” said Cathyleen Williams, a former IHSS provider from San Bernardino County.

Cathyleen’s son Caleb passed away this year because of a congenital heart defect known as hypoplastic left heart syndrome. However, because Cathyleen was her son’s IHSS provider, she was denied unemployment pay, leaving her struggling to make ends meet. “We can’t give up this fight. I don’t want any more parents or spouses to go through the nightmare I’ve been through,” she continued.

In addition to working without access to unemployment, many parent and spouse providers worry about their financial futures without Social Security and Medicare. “I worry about my husband who is 62 years old with a bad back,” said IHSS provider Roxanne Bender from El Dorado County who provides care for her 39-year-old son Jacob who was born with a brainstem defect. “Since we can’t rely on full retirement security, he will likely have to work until his body falls apart. I can’t imagine that I will ever retire either. I will likely have to work the rest of my life to make ends meet.”

AB 1930 was authored by Assemblymember Tom Lackey (R – Palmdale) and coauthored by Assemblymember Lorena Gonzalez (D – San Diego) and Senator Mike McGuire (D – Healdsburg). Although the bill was vetoed, it successfully shed light on the fact that many family caregivers work without access to the same benefits as other working Californians.

“We are disappointed, but not deterred by the governor’s decision to veto Assembly Bill 1930,” said UDW Executive Director Doug Moore. “All home care providers are workers who deserve dignity and respect. We are thankful to the bill’s authors for assisting us in this fight – and especially to the principal author Assemblymember Lackey for his strong support. Spouse and parent home care providers have worked long enough without access to these basic benefits, and UDW will continue to make securing them a top priority.”

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United Domestic Workers of America (UDW)/AFSCME Local 3930 is a home care union made up of nearly 94,000 in-home caregivers across the state of California. UDW caregivers provide care through the state’s In-Home Supportive Services program (IHSS), which allows over half a million California seniors and people with disabilities to stay safe and healthy at home.

Yesterday, UDW caregivers from around the state gathered in Sacramento to urge Governor Brown to sign Assembly Bill 1930. We delivered petitions signed by over 3,600 IHSS providers and members of our communities to his office in the Capitol.

Assembly Bill 1930 addresses a problem facing an estimated 86,000 parent and spouse IHSS providers who are currently left out of Social Security, Medicare, and unemployment benefits because of unfair state and federal policies.

“Parent and spouse providers work as hard as other home care workers,” said Lidia Rodriguez who works as the home care provider for her son and a 73-year-old woman in Stanislaus County. “All workers should have access to these benefits.”

Susana Saldana provides care for her son Mario who lives with cerebral palsy in Merced County. Unlike Lidia who should receive Social Security and other benefits for the work she does for her elderly, non-family client, Susana cares solely for Mario and she’s worried about her future. “I may not be able to retire,” she said. “I could end up homeless without Social Security.”

If AB 1930 becomes law, it will be the first step in our journey to secure these vital retirement and social safety net benefits for home care workers who care for their spouse or child. The bill would establish the In-Home Supportive Services Family Caregiver Benefits Advisory Committee, which would study how denying workers benefits like Social Security and unemployment hurt IHSS providers and our families. “It’s an injustice,” said Assemblymember Tom Lackey (R – Palmdale), the author of AB 1930. “It’s something that is very wrong with our system.”

So far, with help from UDW caregivers, as well as Assemblymember Lackey and the bill’s coauthors, Assemblymember Lorena Gonzalez (D – San Diego) and Senator Mike McGuire (D – Healdsburg), AB 1930 has gathered widespread public support and was passed by both the Assembly and the Senate with unanimous, bipartisan support.

Another member of the legislature, Assemblymember Cheryl Brown (D – San Bernardino) who serves as a caregiver for her husband who lives with ALS, came out to support caregivers yesterday. “Home care providers do the tough, stressful, yet vital work of looking after the day-to-day needs of the people for whom they care,” she said. “Despite the important nature of in-home care, all caregivers are not treated equally.”

UDW Executive Director Doug Moore thanked the legislature for their support, and called on Governor Brown to follow suit. “Home care workers, like nearly every worker in this country, including our governor, should at the very least receive Social Security when they retire,” he said.

William Reed takes care of his 39-year-old son in Placer County. His son lives with autism and requires constant care. Although William receives retirement benefits from a previous job, he worries about his wife who doesn’t pay into Social Security or Medicare. “We follow the same guidelines,” he said. “We’re held up to the same standards as all IHSS home care providers…We are paid caregivers. This work is our job. We deserve to retire with the same benefits as nearly every other American worker.”

Cathyleen Williams’ son Caleb was born with a terminal heart defect. Cathyleen worked as Caleb’s IHSS provider in Barstow until he passed away in March. When she applied for unemployment, Cathyleen was denied, because her home care client was her son.

“No one should have to endure the death of their young child,” she said. “But to grieve while also scrambling to make sure your bills are paid and that you don’t end up homeless? I wouldn’t wish this nightmare on my greatest enemy.”

William and Cathyleen were joined by about a dozen UDW caregivers as they walked the petitions into the Capitol. Once inside, William and Cathyleen, accompanied by UDW Executive Director Doug Moore, Assemblymember Cheryl Brown, and Assemblymember Lackey took the petitions into the governor’s office. Assemblymember Lackey gave our message to a member of Governor Brown’s staff: “These are support petitions for this particular measure the governor will be evaluating soon. The measure was unanimous in both houses…it’s very, very important to very many people.”

Yesterday, with the delivery of our petitions, we gave Governor Brown over 3,600 reasons to do what is right and sign Assembly Bill 1930. He has until the end of September to sign or veto the bill.

For Immediate Release
Thursday, August 25, 2016

Contact: Margitte Kristjansson, 619-548-4304

California home care providers who care for their spouse or child are ineligible for Social Security, Medicare, and unemployment benefits.

Sacramento – Today In-Home Supportive Services (IHSS) home care workers met at the Capitol to deliver petitions to Governor Brown signed by over 3,500 Californians. The petitions call on the governor to sign Assembly Bill 1930, a bill sponsored by the United Domestic Workers/AFSCME Local 3930, and authored by Assemblymember Tom Lackey (R – Palmdale) with coauthors Assemblymember Lorena Gonzalez (D – San Diego) and Senator Mike McGuire (D – Healdsburg).

If a home care provider’s client is their spouse or child, they are excluded from making contributions to FICA and State Unemployment Insurance – leaving them ineligible for Medicare, Social Security, and unemployment pay. AB 1930 begins to address this injustice by convening a committee to study the economic impact exclusion from these benefits has on home care workers and their families.

“All caregivers work hard for their clients, and all caregivers deserve these very basic benefits,” said UDW Executive Director Doug Moore. “Today, we call on Governor Brown to help us in our work to fix this issue by signing AB 1930.”

“In-home care workers who care for their families are entitled to the same employment benefits that every other worker in the same program receives,” added Assemblymember Lackey.

Cathyleen Williams from Barstow worked as her son Caleb’s IHSS home care provider for nine and a half years until he passed away in March. When Cathyleen applied for unemployment insurance, she was denied because Caleb – her home care client – was her son. “No one should have to endure the death of their young child,” said Cathyleen. “But to grieve while also scrambling to make sure your bills are paid and you don’t end up homeless? I wouldn’t wish this nightmare on my greatest enemy.”

William Reed, a home care provider for his 39-year-old son with autism in Placer County worries about not only his own retirement plans, but those of his fellow spouse and parent caregivers as well. “We deal with high levels of stress, work without real respite time, or paid leave, and to add insult to injury, we can’t even count on Social Security or Medicare when we retire,” he said.

AB 1930 was passed unanimously by both the Senate and the Assembly. Caregivers are calling on Governor Brown to look at the human impact that life without access to unemployment benefits, Social Security, and Medicare has on caregivers, and sign AB 1930.

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United Domestic Workers of America (UDW)/AFSCME Local 3930 is a home care union made up of nearly 94,000 in-home caregivers across the state of California. UDW caregivers provide care through the state’s In-Home Supportive Services program (IHSS), which allows over half a million California seniors and people with disabilities to stay safe and healthy at home.

UDW asked and you answered!

Hundreds of spouse and parent caregivers have responded to UDW’s survey on how ineligibility for Social Security, Medicare, and other benefits impacts our families. Currently home care workers who care for their spouse or child are unable to receive important retirement and social insurance program benefits. Due to state and federal laws, these providers are currently unable to make Federal Insurance Contributions Act (FICA) and State Unemployment Insurance (SUI) contributions on their paychecks, which fund these benefits.

Of providers surveyed, approximately 75 percent of us care for our child, while 17 percent care for our spouse.

An overwhelming 92% of those surveyed are in favor of changing state and/or federal laws to allow parent and spouse providers to receive Social Security, Medicare and other benefits.

 

Nearly 91% of providers surveyed said this issue should be a high priority for UDW.

 

About 90% of surveyed providers want to fight for Social Security and Medicare knowing if we win, we would be required to contribute 7.65% of our wages to FICA.

 

And about 81% of providers who were surveyed want to fight for unemployment benefits knowing if we win, we would be required to contribute a small portion of our wages to the SUI program.

 

In addition, many of us expressed worry about what we will do as we age without the security that comes with Social Security and Medicare.

“I have no retirement plans as a parent provider. Not only do I have to worry about who will care for my daughter Katie when I am unable to care for her, but I will have to worry about how I will live as well.” -Claire Kaufman, an IHSS provider from El Dorado County

“We live month to month, because I don’t make much as my daughter Delaina’s full-time home care provider. And if something were to happen and I lost my job as her provider, I wouldn’t even qualify for unemployment. In the time it could take me to find a new job, we could lose our home, our car – everything.” -Christine Baur, an IHSS provider from Kern County

Our next steps

This year, we are sponsoring Assembly Bill 1930, which would establish an advisory committee to look at the impact that the denial of state unemployment insurance and federal Medicare and Social Security benefits has on IHSS spouse and parent providers. This will create awareness of the problem, and educate lawmakers and the public on this injustice.

On a federal level, we’re supporting the Social Security Caregiver Credit Act of 2016 in the United States Senate, and asking California Senators Dianne Feinstein and Barbara Boxer to stand with us by cosponsoring the bill. The bill is a step toward winning Social Security and Medicare for parent and spouse home care workers throughout the country.

It’s not too late to share your thoughts and experiences with UDW. If you are a spouse or parent IHSS provider, click here to take the survey. And click here to tell Senator Feinstein and Senator Boxer to join us in our fight to win justice for home care.