For Immediate Release
September 23, 2016

Contact: Margitte Kristjansson, 619-548-4304

Senate Bill 1330 updates law enforcement’s “Be On the Lookout” bulletin to include people with developmental disabilities

Sacramento – Today Governor Brown signed Senate Bill 1330 into law. The bill, which was sponsored by the United Domestic Workers/AFSCME Local 3930 (UDW) and authored by Senator Cathleen Galgiani (D-Stockton), updates the “Be On the Lookout” bulletin to include individuals who are cognitively impaired or developmentally disabled.

The “Be On the Lookout” alert is a tool used by California law enforcement to quickly search for and locate a missing person who is at-risk. Previously, legislation limited the scope of “at-risk” to a person who is mentally impaired. A small update to the law now ensures that the estimated 250,000 Californians who live with developmental disabilities are covered as well.

“We’re thankful to Senator Galgiani for her leadership on SB 1330,” said UDW Executive Director Doug Moore. “The bill made a small but critical update to a policy that affects many families in California. Every minute a loved one is missing is terrifying, and every moment counts. By updating the law’s language to include those who are cognitively impaired and people with developmental disabilities, we can give more peace of mind to thousands of families in our state.”

Half of the parents surveyed by the National Institutes of Health reported that their children with autism spectrum disorder wandered away from home or their families, and a quarter of those who wandered were missing long enough to be considered in danger.

“My son is getting older and is prone to wander. Signing SB 1330 into law means that law enforcement will know he is a person with developmental disabilities and therefore at higher risk,” said UDW Vice President Astrid Zuniga, who helped champion the bill. Astrid’s son Manuel lives with severe autism, and she works as his in-home care provider in Stanislaus County. “This bill could save lives by giving police officers a better understanding of who they are looking for.”

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United Domestic Workers of America (UDW)/AFSCME Local 3930 is a home care union made up of nearly 94,000 in-home caregivers across the state of California. UDW caregivers provide care through the state’s In-Home Supportive Services program (IHSS), which allows over half a million California seniors and people with disabilities to stay safe and healthy at home.

Yesterday, UDW caregivers from around the state gathered in Sacramento to urge Governor Brown to sign Assembly Bill 1930. We delivered petitions signed by over 3,600 IHSS providers and members of our communities to his office in the Capitol.

Assembly Bill 1930 addresses a problem facing an estimated 86,000 parent and spouse IHSS providers who are currently left out of Social Security, Medicare, and unemployment benefits because of unfair state and federal policies.

“Parent and spouse providers work as hard as other home care workers,” said Lidia Rodriguez who works as the home care provider for her son and a 73-year-old woman in Stanislaus County. “All workers should have access to these benefits.”

Susana Saldana provides care for her son Mario who lives with cerebral palsy in Merced County. Unlike Lidia who should receive Social Security and other benefits for the work she does for her elderly, non-family client, Susana cares solely for Mario and she’s worried about her future. “I may not be able to retire,” she said. “I could end up homeless without Social Security.”

If AB 1930 becomes law, it will be the first step in our journey to secure these vital retirement and social safety net benefits for home care workers who care for their spouse or child. The bill would establish the In-Home Supportive Services Family Caregiver Benefits Advisory Committee, which would study how denying workers benefits like Social Security and unemployment hurt IHSS providers and our families. “It’s an injustice,” said Assemblymember Tom Lackey (R – Palmdale), the author of AB 1930. “It’s something that is very wrong with our system.”

So far, with help from UDW caregivers, as well as Assemblymember Lackey and the bill’s coauthors, Assemblymember Lorena Gonzalez (D – San Diego) and Senator Mike McGuire (D – Healdsburg), AB 1930 has gathered widespread public support and was passed by both the Assembly and the Senate with unanimous, bipartisan support.

Another member of the legislature, Assemblymember Cheryl Brown (D – San Bernardino) who serves as a caregiver for her husband who lives with ALS, came out to support caregivers yesterday. “Home care providers do the tough, stressful, yet vital work of looking after the day-to-day needs of the people for whom they care,” she said. “Despite the important nature of in-home care, all caregivers are not treated equally.”

UDW Executive Director Doug Moore thanked the legislature for their support, and called on Governor Brown to follow suit. “Home care workers, like nearly every worker in this country, including our governor, should at the very least receive Social Security when they retire,” he said.

William Reed takes care of his 39-year-old son in Placer County. His son lives with autism and requires constant care. Although William receives retirement benefits from a previous job, he worries about his wife who doesn’t pay into Social Security or Medicare. “We follow the same guidelines,” he said. “We’re held up to the same standards as all IHSS home care providers…We are paid caregivers. This work is our job. We deserve to retire with the same benefits as nearly every other American worker.”

Cathyleen Williams’ son Caleb was born with a terminal heart defect. Cathyleen worked as Caleb’s IHSS provider in Barstow until he passed away in March. When she applied for unemployment, Cathyleen was denied, because her home care client was her son.

“No one should have to endure the death of their young child,” she said. “But to grieve while also scrambling to make sure your bills are paid and that you don’t end up homeless? I wouldn’t wish this nightmare on my greatest enemy.”

William and Cathyleen were joined by about a dozen UDW caregivers as they walked the petitions into the Capitol. Once inside, William and Cathyleen, accompanied by UDW Executive Director Doug Moore, Assemblymember Cheryl Brown, and Assemblymember Lackey took the petitions into the governor’s office. Assemblymember Lackey gave our message to a member of Governor Brown’s staff: “These are support petitions for this particular measure the governor will be evaluating soon. The measure was unanimous in both houses…it’s very, very important to very many people.”

Yesterday, with the delivery of our petitions, we gave Governor Brown over 3,600 reasons to do what is right and sign Assembly Bill 1930. He has until the end of September to sign or veto the bill.

When Madera County caregiver Cynthia Wilson’s IHSS paycheck didn’t arrive on time in January, she and her grandson lost their apartment.

Thankfully, they were able to turn to friends and neighbors for help, but since then she has been terrified that another late paycheck or unexpected expense could leave her homeless again. And that worry increases exponentially when Cynthia thinks about retirement, because like many IHSS providers, Cynthia has no retirement benefits or savings.

“I’m 62,” said Cynthia. “If I work until I’m 70, I might get about $1,200 a month from Social Security, but that’s not set in stone either.”

Cynthia shares a worry that many UDW caregivers who are eligible to pay into social security can understand: will it be enough when we retire? “I’m scared that it won’t be, and my grandson and I could end up homeless again,” she said. I’m raising him now, so whatever affects me affects him. If I can’t buy food, he can’t eat. If I can’t pay the electricity bill, he sits in the dark with me.”

If passed by the state legislature and signed into law by the governor, Senate Bill 1234 would implement the California Secure Choice Retirement Savings Program on January 1, 2017. This program would provide workers – including all IHSS providers once it’s determined to be legally permissible under state and federal laws- with the opportunity to contribute a small percentage of their wages towards their own retirement savings account.  There will be no employer match but this is an important first step toward easing some of the worries about the future that caregivers like Cynthia live with every day. And IHSS providers are not alone: about 7.5 million workers in California lack access to a retirement savings program, and three out of five families with a head-of-household that is 65 or older have no retirement money saved.

“Being able to actually put money aside for retirement would give me a little extra,” said Cynthia. “I don’t want to have to rely on food stamps and other public assistance. I want to feel secure, and at least able to take care of my basic needs.”

Kady Crick, an IHSS provider from Riverside County, echoed Cynthia’s feelings. “I’ll be 61 this year. I want to know I have a cushion besides Social Security when I retire,” she said. “This program would give my husband and me more comfort for the future, because Social Security may not be enough.”

SB 1234 currently includes IHSS providers, and if we are determined to be eligible for the program, the California Secure Choice Retirement Savings Program will help IHSS caregivers take control of our financial future, so we can retire with dignity.

Look out for more updates on SB 1234’s progress on www.udwa.org and www.facebook.com/UDW.

And we’re still working to secure basic retirement benefits like Social Security and Medicare for parent and spouse IHSS providers. Read more here: http://www.udwa.org/2016/05/help-caregivers-win-social-security-medicare/.

By Doug Moore, UDW Executive Director

Gloria Carter has run a home-based daycare in Sacramento County for over 20 years. She provides child care and educational opportunities for the 12 kids in her care with the help of one daycare assistant. And she’s seen first-hand the child care crisis both California and the nation are experiencing.

“It’s terrible,” said Gloria. “Many of the parents of the kids in my care struggle to pay for child care while trying to make ends meet, and when I lose kids in my daycare, my family struggles too.”

Far too many working families can’t afford care, and family child care providers are dealing with wages so low that they can’t afford to keep their home-based daycares open. These problems add up to decreased access to quality, affordable child care and early learning opportunities for our children. But there is a solution: Make an investment in family child care providers to increase families’ access to child care.

And with numbers like these, it’s clear we need to invest in child care now more than ever.

In 2014, the cost of child care for a preschooler in California was approximately $9,100 in a child care center, and $7,850 in a home-based daycare. And this year, an analysis by the Economic Policy Institute found that it may be cheaper for a California family to send their child to college than to pay for child care for an infant. In fact, California is home to the 11^th highest child care costs in the country. Families are struggling to provide for other basic needs like rent and food, because the cost of child care is, on average, a third of their income.

Families, especially low-income parents, rely on family child care providers to care for and teach their children while they work. And when parents can’t work because they can’t afford care for their children, they struggle to provide for their families.

“A mom of one of my kids couldn’t afford child care any longer, so she took her daughter out of my daycare,” Gloria recalled. “She reduced her hours at work, which meant reducing her income, so that she only worked when her daughter was in school.”

In California, low-income families can apply for child care subsidies to help them afford care for their children. However, many families in need don’t have access to the care because there aren’t enough slots, and others are just barely over the income threshold to qualify. All too often, families are forced to make tough decisions between paying for care and going to work.

This year, UDW is supporting a major investment in California’s child care system via the state budget. A quality investment in child care, including family child care providers, will help ease the financial worries of parents throughout the state. And right now, the best way to do this is to stabilize the child care system.

UDW supports an increase in subsidy rates, which will give family child care providers like Gloria a much needed and deserved increase in their pay – making it easier for them to afford their work-related expenses and keep their daycares open for business.

Investing in family child care providers and increasing access to care is a wise investment to make here in California, and throughout the country.

Doug Moore is the Executive Director of UDW/AFSCME Local 3930, as well as an International Vice President of UDW’s parent union AFSCME.